CCI Children Main Caregiver BurdenSituation Influencing Factor
南京市卫生科技发展项目（YKK22171）
目的：探讨慢性危重症患儿主要照顾者照顾负担状况及其影响因素。方法：采用目的抽样法选取 2021年 1月-2022年12月南京市某三级甲等儿童医院PICU住院的慢性危重症患儿的主要照顾者116 人为研究对象，采用一般情况调查表、Zarit 照顾者负担量表评估其照顾负担。结果：慢性危重症患儿主要照顾者 ZBI 总分为45.62±13.62分，其中，无或轻度负担 10.9%，中度负担 29.3%，重度负担 59.8%。回归分析显示，医疗支付方式、患儿患病时长、家庭人均月收入、家庭参与照顾人数等影响主要照顾者照顾负担（P＜0.05）。结论：慢性危重症患儿主要照顾者普遍存在中重度照顾负担，应关注长期患病、经济状况差的家庭主要照顾者，建议医护人员通过增加医保政策宣传、开展居家延续性护理指导、增加社会支持等措施降低照顾者负担。
Objective：To explore the care burden of the main caregivers of children with chronic critical illness and its influencing factors. Methods：Using the objective sampling method，116 main caregivers of children with chronic critical illness（CCI）hospitalized in PICU of a certaingrade A tertiary children’s hospital in Nanjing from January 2021 to December 2022 were selected as the study subjects，and their care burden was assessed using the general situation questionnaire and the Zarit caregiver burden scale. Results：The total score of ZBI of the main caregivers of CCI was（45.62 ±13.62），of which 10.9% had no or mild burden，29.3% had moderate burden and 59.8% had severe burden. Regression analysis showed that the medical payment method，the length of illness of the child，the monthly income per capita of the family，and the number of families participating in care affected the care burden of the main caregivers（P < 0.05）. Conclusion：The main caregivers of children with CCI generally have moderate and severe care burden. Attention should be paid to the main caregivers of families with long-term illness and poor economic status. It is recommended that medical staff reduce the burden of caregivers by increasing the publicity of medical insurance policies，carrying out home-based continuous nursing guidance，increasing social support and other measures.